Christine Rose Jackson

In September of 2023 we found out we were pregnant with little Christine. Alisha and Isaiah were there with us when we found out. Isaiah was nervous and excited to have a new sibling. One of the most exciting and scary times of our lives. As time went on, we went to the doctor and confirmed the pregnancy.

As time passed, we started talking to little Christine in mom’s tummy. We also figured out she loved apples with peanut butter. She moved a lot when I would eat that. All of us thought that was cute and funny.

We went to our monthly doctor’s appointments and heard her heartbeat for the first time. It made our hearts melt. One visit she was moving so much that the doctor couldn’t catch her heartbeat, so they had to do an ultrasound which confirmed she was a girl. That was right before Christmas so we could tell the family.

Once we got to 32 weeks we went to a doctor’s appointment. Everything went well, other than she was small. Then they sent us to the Saint Luke’s in Meridian for monitoring. They let us go home that night, but we had to go back the next morning for monitoring. We were admitted at that time.

After one day and night of monitoring, Christine Rose Jackson was born on March 30, 2024, by an emergency C-Section that was a scary moment. That same day, she was transferred to the Boise location. The next morning, Austin and I were transferred there too.

She was in the NICU. It was a lot to deal with. She had a ventilator on to help her breathe and a feeding tube. Then the doctors said they had to run tests on her as well. That’s when the doctors told us she had a rare genetic disease called Lissencephaly, also called smooth brain. So, then we had to do genetic testing so they could look for a common factor that could help our daughter. Then we had to wait for genetics to come back with results.

While waiting for the results, we got to do diaper changes, along with wipe down baths, lots of bows and skin to skin contact with our Littles. We also nicknamed Christine Rose Jackson “Littles”. We also got to put her in clothes. She also got to do lots of footprints with the nurses at the NICU. She also got to meet her big sister and big brother, who loved her so very much. Austin and I read her stories every night. We got lots of flowers for her. We also had a wonderful baby shower. We also noticed that she suckled her feeding tube when she ate. That made mom and dad smile. She was always pointing at everyone. Then we got the other genetic test results back, which confirmed that she had Lissencephaly, Stage 4 out of 5. That’s when the doctors told us she wouldn’t have long to live.

A few days later they called us and told us her potassium was too high. They told us to come down to the hospital. Once we got to the NICU, the doctor was waiting outside her room and told us our baby was dying. In all the calamity, they had us go in the room to be with our little girl. While they were trying to get her potassium levels lower, they were able to get her stable enough to have family come say goodbye. She held on for a whole other day and night before she passed on April 19. 2024.

We appreciate all of our family for supporting and comforting us through this tragic time.

-Our baby girl-
Mom, dad, sister, and brother will love you forever and always!


Please wear bright colors/Easter colors for the memorial service.